Barbara Guinn, Reader in Biomedical Sciences was senior author on a review by recently graduated PhD student, Fidelia Bature, published this week:
Fidelia Bature, Jitka Vsectekova, Dong Pang, Yannis Pappas and Barbara Guinn (2019) Retrospective Medical Record Research: Reflections of A Unsponsored Researcher Biomed J Sci & Tech Res 21(4). BJSTR.MS.ID.003642
The review discusses the difficulties faced by individuals attempting to access primary care data for their studies. The PhD had focused on the identification of patterns in signs and symptoms preceding a clinical diagnosis of Alzheimer’s Disease (AD) and this review reflects on the experiences of undertaking practice recruitment, issues that arose around access to data and the requirement for stakeholder commitment, with proposals for other similar projects that attempt to undertake similar research.